Friday 16 October 2015

For reference: Tushikamane - Overview of methodology

EMBRACE – Tushikamane:
Reducing death through community mobilisation and women’s groups


Tushikamane attempts ‘Kupunguza vifo vya wajawazito na watoto’:
That is, to reduce deaths in pregnancy and childhood.

EMBRACE is the English name:
Empowering Mothers and Babies to Receive Adequate Care & Equality

The mission is this:
Through empowerment and education of women, it hopes to reduce tragic deaths,
and to bring sustainable, multi-faceted enrichment
to the lives of impoverished Tanzanian villages.


The Problem: Tragic death of mothers and babies in rural Tanzania

In 2013, in the world, a total of 289,000 women died of complications of pregnancy and childbirth.  For every women who dies, approximately 20 others suffer serious injuries, infections or disabilities.

Rural Tanzania has far, far more of these tragedies than it should:  Every day, 35 mothers die in relation to childbirth. In rural areas, I in 10 children do not reach their fifth birthday. An unknown known suffer consequences such as brain damage. 

In isolated rural areas such as Tunguli, in fact, nearly 1 in every 100 women dies in childbirth. The five main causes are eminently addressable: bleeding, sepsis, obstructed labour, eclampsia, and unsafe abortion.  Each maternal death deals a disproportionate blow to the village from which the woman comes – who will look after the other children, and perform the relentless tasks of daily living?

There are many interconnected reasons why these things are not dealt with well, eg: lack of access to health care; social inequality; lack of education; chronic disease; malnutrition; long distances to travel when sick; poor family planning; and poor transport. Underlying it all, 90% of the population live on $2/day or less.

Berega Hospital serves a vast and inaccessible territory of rural Tanzania with a population of 217,000. There are 8,500 births/year, of which only 1,000 occur in a health facility. Tunguli clinic serves an area of perhaps 625 sq km, and according to the latest census this might represent as many as 20,000 people, (although by no means all of these use Tunguli Health Centre).


Why use community mobilisation & women’s groups? Why not just fix things?!

It is tempting, when working with such abject need, simply to move in and try to fix things – build a clinic, set up family planning, built infrastructure, etc. Fixing things is exactly the right thing to do, as long as you take the community with you, and as long as there is a long-term drive for improvement. The sad reality, however, is that commonly in Africa these interventions are ‘done’ without full community buy-in, and often the long term follow-up is lacking. Such efforts often eventually founder, and commonly fail to reduce mortality: equipment breaks; new ways are not adopted, people do not attend; things are not maintained; etc.

Especially in relation to externally-donated solutions, if they are not owned, then they do not necessarily address the right priorities. Indeed, those things which really influence maternal and child mortality are predominantly defined by the behaviour of those whose voice is under-represented: the women – eg seeking family planning, hospital birth care, or immunisation; using clean water and mosquito nets; persisting with breast feeding; understanding child nutrition; recognising serious illness; etc. Indeed, in the typical male-dominated hamlet, the real life-saving priorities may well not be fully understood by the men.


If what needs to be influenced is the behaviour of women of child-bearing age, then outsiders coming in and telling them what to do is not the answer. The way ahead does indeed begin with education and understanding, but in such a way as to develop internal role models, so that women begin to copy successful behaviour. Women must develop a stronger voice.

This voice of the women, in turn, leads to identification of core infra-structural needs such as transport, crops, employment, water, food, primary care access, etc. Addressing these needs once they have already been owned and prioritised makes it much more likely for them to work.

It is now clear from evidence in a number of countries, that the way to engage women of child-bearing age is to begin with women’s groups in the hamlets. Although they begin with bringing younger women together, they eventually bring in all of those whose voice should be heard, including older women, men, and those whose existing role impinges on maternal and child health. The resulting group is called a ‘PLA Group’ – Participatory Learning & Action Group.


PLA Groups (Tushikamane Groups)

PLA groups will try to reduce death of mothers and babies by creating a space for discussion where community members, and women in particular, are given an equal voice, and are able to identify prioritise problems that cause death.

This in turn will result in identification of needs and locally-developed solutions, which will go beyond health; including tackling education, transport, water, sanitation, food, agronomy, family planning and poverty, (as successful programmes such as those run by Hands4Africa have already shown!).

The extended Tushikamane support network can then help the community to develop, implement and evaluate their own locally feasible solutions. Working each to their own strength, but in harmony with the whole, partners, charities and initiatives both within and outside the Tunguli community can seek to turn solutions into reality, using well-judged, well-executed and sustainable methodologies, eg breast feeding promotion, growth charts; sanitation systems; immunisations; protected wells; affordable emergency transport; family planning; food and cash-crop plantations; malaria prevention; anaemia prevention; TBA education; female education groups; etc.

PLA Groups begin with women of reproductive age, (16-49). Pregnant women, new mothers and adolescent girls will particularly be encouraged to attend.  As time goes on, all those other community members concerned about maternal and newborn health issues, including men, older women and local leaders, will also be eligible to attend and will be made aware of the women-centred nature of the groups. 

PLA groups are not health education groups where a facilitator gives messages to group members like a teacher. Instead, PLA groups are a space for discussion where women and other community members identify and prioritise problems, then and develop and implement their own locally feasible solutions to these.

This discussion takes place through a closely directed cycle of 14 meetings of the group, and at each meeting there is a specific agenda, and a specific purpose. This takes place through four distinct phases. Groups will be guided through this four-phase PLA cycle of meetings by either Ester Paul or Rehema Semwali, (the ‘Facilitators’).

As an important follow-up to the process, the Tushikamane Project will also attempt to measure the effects of the programme, to learn lessons for possible future expansion. This will be facilitated by the recent road mapping exercise, and standardised place-names of the villages and hamlets.



OVERVIEW OF THE TUSHIKAMANE GROUP CYCLE


TUSHIKAMANE groups will be guided by Facilitators
through a ‘participatory learning and action cycle’
with four phases and a total of 14 meetings.


How long will the Tushikamane Group approach take?
The design and teambuilding process should take approximately two months.  Groups should meet roughly every fortnight, and no less than every month, depending on what is most acceptable to them.  Implementation of the strategies identified should be undertaken for between three to six months.  As a result, you can expect the following timescale for implementing the Tushikamane group approach:

Design, set-up and teambuilding
2 – 4 months
Phase 1: Identifying problems together
Five meetings
2.5 – 5 months
Phase 2: Identifying solutions together
Three meetings
1.5 – 3 months
Phase 3: Implementing solutions together
Three meetings
1.5 – 3 months
Implementation of solutions
3 – 6 months
Phase 4: Evaluating together
Three meetings
1.5 – 3 months
Total
12 – 24 months


What has been said so far?:
Overview of Tushikamane:

We will engage communities effectively.

We will do this by creating a group in each selected hamlet.
Elsewhere, each group is called a ‘PLA’ group:
‘Participatory Learning & Action Group For Maternal & Newborn Health’

In the Tunguli Project, it will be called a ‘Tushikamane Group’
(‘Working Together Conference’ or ‘Empowerment Assembly’)

Each group will be taken through a cycle of 14 meetings designed to lead to community prioritisation of actions to reduce death of mothers and babies





IN SUMMARY: HOW WILL TUSHIKAMANE BE IMPLEMENTED?

         WM and AG will visit Malawi in mid-November, at the kind invitation of MaiMwana – the Malawian predecessor of Tushikamane, which has had enormous success in reducing death of mothers and babies using ‘participatory learning & action cycles’.
         At the end of November, the entire team will spend a week in training and preparation for implementation: Laurence Wood, Coordinator; Rev Isaac Mgego, Project Chair; Wilbard Mrase, Project Director; Alex Gongwe, Project Supervisor; and the two Project Facilitators, Esther Paul and Rehema Semwali.
         The Facilitators (EP & RS) will then go into the community, each in her own part of the territory, and will set up 3 Tushikamane groups each.
         This will be done under the close management, guidance and supervision of AG, the Supervisor.
         WM & IM will provide oversight, and will meet weekly with the team members, and monthly with the entire team. This monthly meeting will not only help shape direction and help clarify how to take the next steps, but will also give the Project Director and Project Chair challenges of obstacles to overcome, doors to be opened, etc.
         With this as the back-drop, EP & RS will then guide their groups through the entire Tushikamane cycle of meetings, using a detailed manual to guide them, and picture cards to stimulate discussion
         Alex Gongwe will continually supervise & support the facilitators and groups
         In the last phase of the cycle, an evaluation is made of impact, and of lessons learnt.
         The cycle can then begin again, both in that hamlet, and others nearby.
         This might lead to a large-scale collaborative bid to set up a widespread expansion of the Tushikamane process, based on the experience of the Tunguli pilot.


Setting up Tushikamane Groups – getting ready to begin

Encouraging potential community members to attend
The people most affected by a problem should be actively involved in assessing their situation and deciding what to do about it.  RS & EP will therefore encourage women of reproductive age to join the groups as a priority. These women themselves will determine the membership of the group.

RS & EP will encourage them to prioritise pregnant women and new mothers, as well as newly married women and adolescent girls, especially mothers and adolescents from the poorest families.

We will want them to include any community members who are concerned about death of mothers and babies.  We want the group membership eventually to include all those who are involved in care of women and babies through pregnancy, childbirth and postnatal care. This might include, for example, birth attendants; Village Health Workers; local leaders; local workers for NGOs or Government projects; etc.

Ester & Rehema will encourage all of these to attend the groups they are establishing. They will ensure that all group members realise that their role in the group will be to listen to, and respect the views and opinions of female members, then provide advice and support where necessary to achieve the objective of improving the health of mothers and babies.




Group Chairwoman and Committee
Each group may choose to elect a committee and/or to assign specific responsibilities to specific group members.  The committee should be mainly of women – eg only one-quarter male. The committee should elect a chairperson, and a secretary in the first instance. 

The Chairperson of each group should be a woman. The role of the Chairperson is to lead the group.  This includes providing leadership and direction, managing the committee members and group members and representing the group at local, district and national forums. 

The role of the Secretary is to record group activities. This includes filling the group register and meeting report after every meeting.

As the group develops the need, there should be a treasurer, whose role would be to monitor group funds and other group resources. 

All Group committee members have the role to encourage community members to join the Group, and participate in meetings, and to provide co-facilitation support to the Facilitator, (Rehema or Ester).


How many Group members should be recruited?
The total number of group members registered per group should be approximately 50.  Group membership is open and thus it is likely that the total number of registered group members will increase over the lifetime of a group. 

However, not all registered members will attend every group meeting.  To ensure maximum participation, the optimum attendance of registered members at each group meeting should be 25-30.  With more than this it is difficult for everyone to participate and for the facilitator to manage the group. Meetings should be attended by at least 10 group members to make them worthwhile.  If not enough members come to a meeting, the facilitator and the members who have come can go around the village to fetch the other attendees. If attendance is very low, it is better to cancel the meeting and rearrange it on another date.


Some Rural Tanzanian facts and figures relating to group size
Evidence suggests that groups are most effective where at least 30% of pregnant women are members of groups.  Given the detailed information in the Tanzanian Census, we are able to do some calculations and estimations about group size:

Tanzania has an official village and hamlet structure. A 'hamlet' is 100 households. A 'village' is 3-4 hamlets. If one group should could cover (say) 700 population, then in rural Tanzania this would mean:

·              one hamlet contains around 700 people, (if 7 people per household);
·              this covers about 6 x 4km of territory, (if the population density is 31people/sq km); 
·               (of which mothers at least a third should be in the group); 
·              there may be 175 women of reproductive age, (because they form about a quarter of the population) 
·              the healthy of whom would go on to have more than six children, (fertility rate 6.3)
·              With a maternal death rate of 1 in 200 births in Tanzania as a whole, and perhaps 1 per 100-150 births in
         rural areas, there would be one maternal death every 5 years for each hamlet /women's group;
·              each hamlet of 700 people might have 28 births/year, (Crude birth rate 39); 
·              of these, perhaps 2 neonates and one further under-5 will die each year per hamlet.  

With one Facilitator covering three hamlets this would be a population of around 2,000. That would mean that each Facilitator would start off with one maternal death every two years or so, and around 7 baby/child deaths per year on her patch - huge scope for any intervention to show benefit.



Ensuring to include existing groups
RS & EP will need to find out what activities other organisations and the community are carrying out or planning. This is important to ensure that they do not duplicate efforts and that plans complement or support existing activities.  If there are already any active groups in the community that you can work with, then they should be invited, at the right time, to send representation to the group.

Ester and Rehena should meet with
·         Village Chairmen;
·         with district-level organisations, such as charities and Non-Governmental Organisations, (NGOs);
·         with Governmental officers and initiatives;
·         and with any other possible partners, to find out about existing groups.

The Tushikamane group will have a life of its own, but it must work in harmony and cooperation with existing activities and groups.


Once Groups are formed …
As soon as Tushikamane groups are fully formed, they need to begin the process of discussing and prioritising the issues which cause death of mothers and babies. This discussion is carefully orchestrated over a series of 14 meetings by Rehena and Ester, under the management and supervision of Alex Gongwe; and under the direction and facilitation of Wilbard Mrase and Rev Isaac Mgego.

At the end of the fourteen meetings, there is a formal evaluation which tries to measure the impact of the whole process. If it has gone well, then the fourteen-meeting process is begun again, to search for new priorities. For this reason, the process is called the ‘PLA Group Cycle’.




The following is an overview of the 14 meetings 
for details see the post: Tushikamane 'Methodology in detail'.

THE TUSHIKAMANE GROUP CYCLE
Phase 1: Identifying problems together

The focus of Phase 1 of the meeting cycle is for the Group to identify and prioritise
problems relating to health of mothers and babies



Meeting 1: The hamlet gets together to form a group

The objectives of the meeting are to:
·         To introduce the programme into the local context
·         To introduce the ideas of ‘Participatory Learning and Action’
·         To establish a group committee and ground rules


Meeting 2: Young women identify maternal health problems.
The objective of the meeting is to:
·         To discuss current maternal care home care and service care-seeking practices
·         To identify health problems affecting women during pregnancy, delivery and after birth

Discussions in the Group meetings will be stimulated by Rehena and Ester using some tools designed for the purpose – eg  picture cards illustrating common maternal and neonatal problems, contributing factors, and actions to prevent and/or manage these common problems.

There are 60 cards in all:
·         Problem cards (21 cards): covering the main health problems affecting mothers and newborns
·         Contributing factor cards (17 cards): covering the main contributing factors to these problems.
·         Preventative activity cards (13 cards): covering the main activities people can perform to prevent problems affecting mothers and babies from arising.
·         Management activity cards (9 cards): covering the main activities people can perform to manage problems affecting mothers and newborns once they have already arisen

Example of Problem card - Prolonged labour:


Example of Contributing Factor card - gender-based violence:


Example of Preventative Activity card: Training Traditional Birth Attendants:



Example of Management Activity card: Giving baby the medicine:




Meeting 3: Young women identify neonatal problems

The objectives of the meeting are to identify health problems affecting babies during pregnancy, delivery and after birth; to discuss current neonatal care at home; and to discuss why, when and how women seek help.


Meeting 4: Prioritising problems

The objective of the meeting is to prioritise the three most important maternal and neonatal health problems that will be addressed in this cycle



Meeting 5: Identifying contributing factors

The objective of the meeting is to identify the causes of the priority problems identified


THE TUSHIKAMANE GROUP CYCLE
Phase 2: Identifying solutions together

The focus of Phase 2 of the meeting cycle is for the Group to plan solutions
to address the problems relating to health of mothers and babies

Meeting 6: Identifying prevention and management activities

The objectives of the meeting are to:
·         To identify the activities that can prevent the priority maternal & neonatal health problems from arising
·         To identify the activities to manage the priority maternal & neonatal health problems if they already exist

Meeting 7: Making plans

The objectives of the meeting are to:
·         To identify solutions to prevent and manage the priority problems
·         To identify resources that might help and the barriers that might hinder implementation of these solutions. (eg both VHWs and Birth Attendants might help to deliver on issues such as breast feeding; Family Planning; immunisation; hygiene; malaria prevention; & recognising signs of severe illness.)


From experience the most common types of solutions identified by groups include:
·         Health education
·         Transport
·         Group fund
·         Clean delivery kits
·         Income generating
·         TBA training
·         Liaising and lobbying with health facilities
·         Vegetable gardens

After Meeting 7 the group members should meet to prepare and practice for the presentation to the community in the next meeting.


Meeting 8: Presenting progress to the community

The objectives of the meeting are to:
·         To feedback discussions, including prioritised problems and solutions, to all community members
·         To gather the ideas and opinions of all community members on the issues discussed by the group
·         To get encouragement and support from all community members for the implementation of solutions



THE TUSHIKAMANE GROUP CYCLE
Phase 3: Implementing solutions together

The focus of Phase 3 of the meeting cycle is for the Group to implement the solutions identified to address problems relating to health of mothers and babies

Meeting 9: Planning the solutions
The objectives of the meeting are to:
·         To get cooperation and understanding from all stakeholders in relation to the proposed solutions
·         To finalise and agree an action plan for the solutions


Meeting 10: Gathering resources
The objective of the meeting is to plan how to gather the resources necessary for the solutions to be implemented.


Resource mobilisation
After Meeting 10 the group members should mobilise the resources they need to implement the solutions.


Meeting 11: Developing monitoring tools
The objective of the meeting is to plan how to monitor the progress of implementation of the solutions


Implementing and monitoring the solutions
After Meeting 11 the group members should implement and monitor their solutions.  They should do this for three to six months.  Groups and taskforces should meet regularly with their Facilitator during this period, to review the progress of implementation, celebrate achievements and identify and address any challenges.  The frequency of meetings is determined by the group members themselves.


THE TUSHIKAMANE GROUP CYCLE
Phase 4: Evaluating together

The focus of Phase 4 of the meeting cycle is to evaluate the impact of the solutions implemented on the priority problems identified relating to health of mothers and babies



Meeting 12: Progress in evaluation
The objectives of the meeting are to:
·         To explore why evaluating the group and the solutions together is important
·         To prepare and plan for the evaluation


Collecting evaluation data
After Meeting 12 the group members should gather the evaluation data they need.


Meeting 13: Evaluating the success of projects and of Tushikamane
The objectives of the meeting are to:
·         To evaluate how well the priority problems have been addressed
·         To evaluate the functioning of the group
·         To plan for the future


Meeting 14: Planning for the future
The objective of the meeting is to decide what to do next with the Group.


Restart the cycle
After Meeting 14 the Group should be supported to restart the cycle in Phase 1, 2 or 3 depending on what was discussed and agreed during the meeting.

After one cycle of group meetings, the group should feel ownership of the programme and should have the capacities to continue meeting.  The role of the supervisors and managers is to be available to continue providing technical advice, but the direction and focus of the group is the decision of the group members themselves.


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